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994 Views 7 Replies Last post: Jul 31, 2008 12:00 PM by Az.Sanders RSS
Novice 6 posts since
Jul 30, 2008
Currently Being Moderated

Jul 30, 2008 12:21 PM

Pharma and Online Communities - An obvious need, but how do we create something valueable with so much regulation?

Does anyone have thoughts on or experience with creating online communities for pharma customers? I think there is such a need for people with conditions to connect to one another, but under a pharma name/sponsorship it leads down a narrow path with little freedom (thanks to the FDA and DDMAC) for user generated anything. Granted a lot of the regulation is to protect us as consumers, but hinders pharma co's from offering venues for us consumers to connect.

 

I'd love to hear any thoughts.

 

Thanks for letting me join the community!

rachel

ddmcd Novice 8 posts since
Jun 25, 2008

That's a tough one. Plenty of communities have emerged independently around diseases, conditions, even for independently reporting on adverse drug reactions, but you're pushing for direct involvement of the drug company. Here are a couple of ideas:

 

  1. Tie community buildng to new drug development and testing. Incorporate mutual support and feedback into the mix of what is being tested -- and closely monitored -- in order to reniforce things like seeing that specific target groups take their medication correctly. Maybe this approach could be adapted for introduction of medical technology and therapeutic devices, not just drugs.
  2. Build community around communities already related to patients -- caregivers, nurses, therapists. Emphasize lessons learned, tricks of the trade, mutual encouragement and support. Drug company rewards most original/helpful/adopted ideas that emerge from the group.
  3. Target a group such as hospital pharmacists to aid in developping and sharing "best practices."

 

Just some ideas. Thoughts?

 

Dennis McDonald

http://www.ddmcd.com

Novice 6 posts since
Jul 30, 2008

Now im curious by "Pharma customers" what do you mean exactly? John and Jane Doe who buy from pharmasists?

danielrae Novice 22 posts since
Jul 31, 2008

An interesting one. We currently sell compliance/quality software and one of our largest markets is healthcare and life sciences, such as hospitals, blood banks, medical device manufacturers, pathology labs, pharmaceutical/drug manufacturers etc. Our software is designed to help companies in these markets to comply with FDA and other regulations (e.g. MHRA in the UK, EU guidelines, ISO standards, etc).

 

In terms of using communities, I've had a few customers from FDA regulated industries participate and haven't noticed anything different... perhaps the fact that there's not a lot of users from pharma companies that is the difference.

mdcrocker Advanced 2,575 posts since
Jun 12, 2008

Hi,

There are some large global Pharma that have put in place knowledge collection and sharing in the discovery and development area.  While it is not a community, there is a potential for communities to add value attached to these.  Having access to people and experts and being able to discuss the information will provide a big business value.

Mike

Novice 6 posts since
Jul 30, 2008

While im still alittle hesitant on this one due to its subject (consumers are -rarely- truely qualified when it comes to medicinal drugs, doctor should always be ones first call if theres an undiagnoised problem).

 

Mike provided some good solid information there, i dont know what your -actually- trying to do (put customers more in touch with phrama companies so they can buy more drugs???), but if pharma companies have "put in place knowledge collection and sharing in the discovery and development area." with a decent amount of "legwork" it should be possible to take those seperate threads and plug them into a single "community".

 

Just remeber though.

 

http://en.wikipedia.org/wiki/Wizard's_Rule#Wizard.27s_First_Rule (People are stupid)

 

and

 

"If it can be made someone will make it, if it is made someone will unmake it and/or someone will change it and/or someone will use it in ways its not intended to be used and/or someone will turn it into a "weapon"."

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